Governments, UN agencies and donors acknowledge that engaging communities, including young people, has been critical to the HIV response. However, the opportunities for young people to raise their voices and concerns about their health often remain limited and tokenistic. The phrase ‘nothing about us, without us’ continues to be a powerful call used by many youth activists to ensure that young people are meaningfully involved in decision-making that affects our lives.
Our campaign highlights the benefits of meaningfully engaging young people, not just for young people themselves but to improve the quality of health services and health policies.
The campaign has been designed by the Vibrant Young Voices Consortium, a partnership between CCABA, PATA and Y+ Global that supports excluded adolescents and young people to have a stronger voice in policy, funding, and programming decision-making to secure their health and rights.
Meaningful engagement benefits young people. Young people can be more active in looking after their health and well-being. They learn new skills, such as how to support their peers in adhering to treatment. They grow their confidence and can negotiate with people in power, whether it is a doctor or a government official.
The meaningful engagement of young people also benefits healthcare systems. For instance, young people living with HIV have actively participated in the design of services and programs that are better integrated and more effective in meeting their unique needs. Additionally, they have been instrumental in improving the quality of healthcare services by monitoring clinics and gathering feedback from their communities. Likewise, they continue to lead campaigns that promote sexual and reproductive health and rights, ensuring that adolescents are well-informed and empowered.
Meaningful engagement is not just about giving young people a seat at the table but about ensuring they feel safe, respected and valued. It begins by recognising that young people can help the world deliver Health For All.
As part of the Engage Us. Our Health. Our Rights campaign, which includes a docu-series on the meaningful engagement of young people in health, VYV is launching an art competition to show what meaningful engagement of young people in healthcare looks like to them and its benefits. The art competition offers a unique platform for creative expression, awareness-building, education, and community engagement. By participating, young artists can make a meaningful impact on both their own lives and the well-being of their communities.
Faith Onuh – Nigeria
My name is Faith and I am 23. I am a young feminist and a youth champion, who has been working in the HIV Space for the past 9 years. I have mentored a lot of young people, at the country and global level. I believe in a world where everyone's voice is heard and respected, which is why I fight and push for a healthy and inclusive society.
What does meaningful engagement mean to you?
“When I’ve been asked for my opinion on how to better engage young people when providing health services. And after that I’ve seen them, put it into practise and make use of my suggestion.”
Faith Thipe – Botswana
My name is Faith Thipe and I am 25. I am SRHR Youth Advocate, who is passionate about advocating for meaningful and ethical engagement and participation of adolescents and young people in key platforms of decision making.
What does meaningful engagement mean to you?
“For me it is a two-way street: providers offering knowledge and patients contributing their unique experiences, resulting in a comprehensive approach to well-being.”
Nwankwo Francis Casmir – Nigeria
My name is Nwankwo Francis and I am 27. I am a rights activist for sexual minority persons and very passionate about the ethical and meaningful engagement of diverse youths at all levels. I’m an expert in advocacy, community engagement and peer mentorship. I have always advocated for diverse youths being at all levels of planning, decision-making, implementation and evaluation processes especially on matters that concern them.
What does meaningful engagement mean to you?
“I felt meaningfully engaged in my care when the doctor told me her name and was very interactive while trying to clinically evaluate my symptoms. She even advised me on safer sex practices and suggested I pick some free condoms in one of their outlets at the clinic.”
Patricia Humura – Uganda
My name is Patricia Humura and I am 28. I am an African feminist and aspiring bioethicist passionate about the Sexual and Reproductive Health and Rights of Young people. I am interested in discussing and providing ethical guidance on topics that are usually not spoken of publicly in the area of SRHR.
What does meaningful engagement mean to you?
My doctor asked me to feel free and open up, so that he can offer me the medicine to treat me. He realised that I was scared, anxious and that I was afraid to speak up. But he welcomed, understood, understood and treated me. He also sought my consent and followed up to ensure that I felt better. I would like every person to have a health worker they can confide in like such a doctor. One who is professional, ethical and aims at listening to the needs of their patient.
Monalisa – Uganda
My name is Monalisa Akintole and I am 29. I am a believer in social justice work, particularly interested in SRHR and human rights programming. My passion is to amplify and voice out issues of the LGBTQI community, in spaces where we have not been heard and thus limited our participation in HIV programming.
What does meaningful engagement mean to you?
"For me, it meant that I was listened to and not just a patient who has come to get a service. Instead, I felt respected and involved in my healing process."